Back Flips: Can You Do It? Yes You Can!
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From time to time, we look back at all of the great times that
we have had as a kid or, perhaps, as a college student.
We may sit in a chair and daydream about the things we
used to do. On the way to a pool party, I was driving and
thinking that very thing, «I wonder if I can still do a back
flip off of the high diving board.» «Oh, Sandy», I thought
to myself, «That is probably something you just shouldn’t
do…..» A forty year old doing a back flip off of the high
diving board? It’s not going to happen, honey.
***
I experienced something so very cool on Wednesday evening.
We were invited to attend a ‘Pool Party’ at a local aquatic
center.
***
I can’t say that I enjoy the transition from wearing street clothes
to icy, cold water. But,sometimes, you have to
do the things that you do not want to do.
***
This is the first time in three years that I would be swimming
with three cute little preschoolers and early elementary
students. «This is going to be a blast», the oldest one said.
«Swimming is fun», said the middle child. And, the youngest
wearing his Lightning McQueen swimming shorts could barely
wait to get out in to the pool.
***
We got on our swimming suits and marched out in a row to
the edge of the pool. My two oldest children joined a friend in
the 3′ foot end of the pool. Lightning McQueen and I headed to
the diving board. «Let’s get this over with», I thought to myself.
***
I alerted the lifeguard and recruited a young volunteer to watch
Lightning McQueen while I did what I always dreaded; simply
getting in to the pool.
***
I marched up to the low board and climbed the ladder. While
at the top of the ladder, I just started running. Getting to
the end of the diving board I gave a little push off the end and,
«Splash!», I entered the water with the enthusiasm of a sillly
seal at the zoo. I swam a while under water and then,
«Splash!» I jumped up out of the water and cheered,
«I can do this!» Inside of me, my spirit smiled.
***
It had been several years since I last practiced my diving skills.
I did not think that I should dare to dive again. My muscles
had been very unreliable and at times I would fall or trip with
out a good reason. I had tumbled down the stair way too many
times to count. I had tripped over the corner of a trundle bed
and was sent flying into the wall making a 5″ x 5″ inch hole.
[A nurse practitioner told me not to fix it; «Frame it!», she
declared.]
***
It is not that I have a limb missing. I haven’t had a major
stroke or a heart attack. I have all of my senses and can do
most things reasonably well.
***
I recall one time when I was playing with my little
«Lightning McQueen» in the living room. We were dancing
with the two older sisters. We were simply celebrating that we
were having a great day! I held my little Lightning McQueen
by the area just above the elbows. With both arms, I held him
and began to twirl around, just once or twice, or maybe three
times. We were laughing and giggling. In a second, my
hands simply let go, unannounced, and Lightning McQueen
tumbled to the floor.
***
His little face asking, «Why did you do this?»
He began crying.
I began crying.
My muscles simply ‘let go’.
They went from fully functional to
jellyfish mode.
I could not understand it.
I was scared. I was shocked.
***
Months later, I did a sleep test and sleep apnea
was confirmed. I discussed the symptoms with a
neurologist and they tested for narcolepsy. I had
all of the symptoms. The specialist said that
some people don’t meet all of the criteria but, they
still may have narcolepsy. Cataplexy is a tale tell
sign of narcolepsy. It is when your muscles simply
let go or relax when you are experiencing ‘fear, shock,
grief, laughter, or anger’.
Profound cases of cataplexy due to narcolepsy show
people falling down at the mention of something funny
or at the thought of something scary.
***
Narcolepsy with cataplexy is a person’s worst
nightmare. It is a condition that gives the
appearance of someone being ‘drunk’ without
ever having a sip of alcohol. It is dropping things
that you should hold on to and falling down in the
very worst situations- when you are extremely happy or
when you are extremely fearful.
***
Diving off of the diving board was just one more
statement to the world that I am not giving in to
Narcolepsy and Sleep Apnea. I am NOT giving in or
giving up.
***
I have spent a considerable amount of time
volunteering with children. I always make
sure that a back-up is within a short distance.
I have never fallen asleep while outdoors in
the open air. I have never ‘passed out’. I
do fall asleep at the wheel and my doctor
and I have an agreement for my safety. I
drive short distances with my children, I never,
ever offer any one else a ride in my car, and when
I drive long distances, I stop and nap about
once per hour.
***
The only problem that I have
encountered thus far is a host of police officers
stopping to check up on me; shining a flash light
in my face, and checking on my driving status.
«Have you been drinkin’, Ma’am?», is common place.
***
Concerning my faith, every time that a police
officer stops to check on me in a parking lot
or stops me for driving too slowly or for driving too
close to the side of the road, I see it as a sign-
that my angels are working overtime to keep me safe.
***
After several incidents where officers had inquired
about drugs or alcohol, I have resorted to immediately
stating that «I have not been using drugs or alcohol,
I am just overtired.» It doesn’t make for very good
prose or poetry, but it is something that I need to
say every time a policeman stops to check on me.
If I don’t say it, they will ask.
***
Narcolepsy is exasperated by stress and there is
stress in abundance in each of our daily lives.
Taking time out during a busy week, declining
an opportunity to socialize and taking a nap
instead, asking for help to carry groceries,
refusing to carry fine china or
breakables, simply spending quiet time with my
family, are some simple tools for dealing with
Narcolepsy. I take Provigil, a miracle drug for
Narcolepsy. I don’t think I could be comfortable
with out it. Provigil provides approximately
12 hours of wakefulness and alertness. After
12 hours, it is back to square one. Remember
the phrase, H.A.L.T.=Hungry, Angry, Lonely, Tired?
Then, halt. I also rely on K.I.S.S. Keep it simple
stupid. 🙂
***
When did you first recognize the symptoms of
Narcolepsy?
1) My professor during my freshman year asked
me about the possibility of a sleep disorder.
2) I lost the ability to water ski in 1990. I
could water ski perfectly well before that time.
3) In an attempt to water ski in 1999, I noted
that my elbows and knees simply could not get
me up on the water. I swallowed a lot of minnows.
4) Moving from place to place with laundry or
groceries, my muscles are constantly releasing
and letting go. I leave a trail of junk behind me
as I am motivating from point A to point B.
5) Hypogognic hallucinations: When you wake
up or when you are falling asleep, there is a
blurr between wakefulness and sleepiness.
An example would be someone jumping up out
of bed and yelling, «There’s a fire! Get out of the house!»,
when in fact, the person was dreaming about a fire
immediately before this sleep disturbance. It is
a blurr between sleep and awake when someone
is acting out their dreams, and yet are sound asleep.
Yes, it is a bit unsettling to know that it happens.
6) Narcoleptic patients experience dreaming when they
are awake and when they are asleep. Usually, there
is a definite boundary between awake and asleep.
Narcoleptic patients experience a blurr between awake
and asleep. One patient told me that he had to ask,
«Is this real, or is this not real?» «Did this happen or
was it a dream?» That is narcolepsy.
***
So- being able to do a back flip off of the diving board
and not experiencing cataplexy was a good moment in
my life. A moment when I could say that «This is one
thing that Narcolepsy can not take away from me;
Swimming and Diving.
Wednesday, April 16, 2008
Journal Entry:
I stood on the edge of the diving board, my back to the pool, clearing
my thoughts, simply erasing fear with a whisper, I prepared to dive,
staring at the wall, my toes gripping the edge of the board, one
leg straight, one leg bent at the knees, generating four bounces,
and I pushed off of the edge…reaching, reaching, reaching,
propelling myself into the icy cold water, and revolving 360 degrees,
four feet above the board, landing feet first into…the icy, cold water.
Ahh! This is life. This is good. I am 21 years old again. Nobody can
take that from me. My greatest fear, doing a back dive, became one
of my greatest pleasures; doing back flips off of the high diving board.
Sandy S. Zoo
www.cottoncandycloud.wordpress.com
***
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